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Clinical Database or Disease Registry

Sponsor

Recruitment Status

Contact

1.

National Renal Registry

(NRR)
Started : 1993

Status:

On Going

Manager

S/N Lee Day Guat
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Publication

1. Prevention of Renal Failure : The Malaysian Experience (2003)
2. The enigma of hypertensive ESRD : Observations on Incidence and Trends in 18. European, Canadian and Asia-Pacific population 1998-2002 (2006)
3. The ESRD Incidence Study Group.Geographic, ethnics, and age related and temporal variation in the incidence of ESRD in Europe, Canadian and Asia-Pacific region 1998-2002. (2006)
4. Trends in incidence of treated ESRD, overall and by primary renal disease, in person aged 20-60 years in Europe, Canada and Asia-Pacific Region 1998-2002 (2007)
5. An Asian regional analysis of Cost Effectiveness of early Irbesartan treatment versus Concentional Anti-Hypertension, late Amolidipine, and Late Irbesartan treatments in patients in type 2 Diabetes hypertension and Nephropathy (2008)
6. Use of Renal registry data for research, healthcare planning and quality improvement. What can we learn from registry data in the Asia-Pacific region? (2008)
7. Potential life saving impact of low-cost epoetin in a dialysis population (2008)
8. Provision of Pediatric Renal Replacement Therapy in Malaysia (2008)
9. Increasing dialysis provision to meet population health needs, healthcare efficiency and equity outcomes : experience of a middle income country Malaysia (2008)

Report

1. 14th Report of the Malaysian Dialysis and Transplant registry, 2006
2. 13th Report of the Malaysian Dialysis and Transplant registry, 2005
3. Twelfth Report of the Malaysian Dialysis and Transplant registry, 2004
4. Eleventh Report of the Malaysian Dialysis and Transplant registry, 2003
5. Tenth Report of the Malaysian Dialysis and Transplant registry, 2002

(MNNR)
Started : 2003

Status:

On Going

Num of SDP:

32 SDPs

Num of data:

39,341 cases from
2004- June 2008

Manager :

Sr Jennifer Loong Yook Ying

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Report:

1. National Neonatal Registry Report Pilot Study
   October to December 2002

Status:

On Going

Num of SDP:

19 SDPs

Num of data:

13,973 cases from
2003 until Jun 2008.

Manager:

Mrs. Norsiatul Azma Mohd Dain

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Report:

1. Preliminary Report of The National Mental Health Registry January to May (2003)

(NTxR)
Started : 2004

Status:

On Going

Num of SDP:

152 SDPs

Num of Data:

6,316 cases from 2004
until Jun 2008

Manager:

Mrs Leong Wei Chee

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Report:

1. Second Report of the National Transplant Registry, 2005
2. First Report of The National Transplant Registry, 2004

Status:

On Going

Num of SDP:

1 SDP

Num of Data:

1,250 cases from 2004
until June 2008

Manager:

Sr Parawathy Sundram

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Status:

On Going

Manager:

S/N Lee Day Guat

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(NED)
Started : 2006

Status:

On Going

Num of SDP:

36 SDPs

Num of Data:

46,367 cases from
2006 until June 2008

Manager:

S/N Teng Kam Yoke

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Publication:

1. Prevalence of blindness and low vision in Malaysian Population : Results from the National Eye Survey 1996.

Report:

1. Second Report of the National Cataract Surgery registry, 2003
2. First Report of the National Cataract Surgery Registry , 2002
3. Preliminary Report of The National Cataract Surgery Registry Report, 2002
4. Estimates from the National Eye Database, 1996

(NCVD)- Acute Coronary Syndrome (ACS) & Percutaneous Coronary Intervention (PCI)
Started : 2006

Status:

On Going

Num of SDP:

ACS : 14 SDPs
PCI : 9 SDPs

Num of Data:

ACS : 7,539
PCI : 4,286
Since 2006-until Jun 2008

Manager:

Ms S Gunavathy Selvaraj

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(NTrD)- Major Trauma Outcome & Traumatic Brain Injury database
Started : 2006

Status:

On Going

Manager:

Mr Mohd Fadhleen Md Dom

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(DiCARE)
Started : 2006

Status:

On Going

Num of SDP:

28 SDPs

Num of Data:

348 patients since 2007
Jun 2008

Status:

On going

Manager:

Mr Kamarul Hafiz Abdul Kadir

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Status:

On Pilot Project – 3
months

Num of SDP:

7 SDPs

Num of data:

Not recruiting yet

Manager:

Sr Julie Lee Pek Keow

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Status:

On going

Num of SDP:

Num of data:

Manager:

Ms Sharifah Azlina Ali

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(NPC)
Started : 2007

Status:

On Going

Num of SDP:

Num of Data:

Manager:

Jacqueline Quah

Email

Status:

On Going

Num of SDP:

Num of Data:

250 cases since 2007 –
June 2008

Manager:

Ms Tee Chin Kim

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Status:

On Going

Num of SDP:

Num of data:

Manager:

Ms Tee Chin Kim

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Status:

On Going

Manager:

Ms Sofiatulakmal Salim

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Status:

On Going

Num of SDP:

6 SDPs

Num of Data:

Not recruiting yet

Manager:

Dr Shanthi Vatharajan

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Status:

On Going

Manager:

Ms Tee Chin Kim

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Status:

On Going

Num of SDP:

Not recruiting yet

Num of data:

Not recruiting yet

Manager:

Ms Norazah Mohd Yusoff

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Status:

On Going

Num of SDP:

Not recruiting yet

Num of Data:

Not recruiting yet

Manager:

Dr Jaya Purany

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Status:

On Going

Num of SDP:

Not recruiting yet

Num of data:

Not recruiting yet

Manager:

Dr Jaya Purany

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Status:

On Going

Num of SDP:

7 SDPs

Num of data:

486 cases

Status:

On Going

Num of SDP:

Not recruiting yet

Num of data:

Not recruiting yet

Manager:

Mrs Norsiatul Azma Mohd Dain

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Status:

On Going

Num of SDP:

Not recruiting yet

Num of data:

Not recruiting yet

Manager:

Mohamad Hidayah Che Hashim

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